Survey of Self-Advocates and Family Members

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The Survey of Self-Advocates and Family Members closed on Nov. 1, 2020. Learn more about opportunities to share your input.

The Texas Council for Developmental Disabilities (TCDD) wants to learn more about what it’s like for people with developmental disabilities (DD) to access services and supports in Texas. To gather input, we are conducting a survey to identify needs that are either being met or not being met. Responses to the survey, which is part of the TCDD Listens campaign, will inform our next state plan and future activities.

Who Should Take the Survey?

If you are a self-advocate — or in other words, a person with DD — or if you are a family member of a person with DD, you can take the survey to share your perspective and experience. A family member could be a parent, a sibling, or another member of the family like a cousin or a grandparent. Also, self-advocates are welcome to ask a family member or friend for help in completing the survey.

What Input Should You Share?

The survey asks about how access to services and supports impacts daily activities, like:

  • going to school;
  • working at a job;
  • visiting a doctor;
  • seeing friends; and
  • getting around town.

For example, if you or your family member has ever had to miss work, school, or an outing with friends because you could not get transportation, then your story will help us better understand what areas need improvement. Or, if you or your family member has ever had difficulty seeing a health care provider, then we would like to know more about your experience.

How Do You Take the Survey?

The survey can be completed online and is available in two versions. One version is for self-advocates, and a different version is for family members. The survey is anonymous, and individual responses will not be shared publicly. The deadline to complete the survey is Sunday, Nov. 1, 2020.



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