Children who have chronic/long-term illnesses or severe disabilities have complex needs that can make the healthcare system difficult to navigate. As doctors are traditionally trained to focus only on the medical situation, they may be unaware of the day-to-day issues in the lives of families with children who have significant needs. In 1994, parents in New York state developed Project DOCC (Delivery of Chronic Care) as a family-centered and community-based pediatric training program designed to increase doctors’ awareness and understanding of the complex issues associated with caring for medically involved children.
Train and then match parents with pediatric and family practice residents in San Antonio to expand doctors’ skills in delivering family-centered care.
With guidance from the national Project DOCC and in partnership with Houston DOCC and Texas Parent to Parent, this project aimed to train and match parents with pediatric and family practice residents in San Antonio to expand doctors’ skills in delivering family-centered care. Residents were to spend time with families in their homes, schools, and community activities to gain first-hand experience on issues parents face in caring for a child with a developmental disability or chronic illness. These relationships with families could provide important skills to residents and insight into the value of the parent-physician partnership.